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UCEER

ELSI Research

The University of Utah has a strong tradition in human genetics and ELSI research. Our NIH grant is a collaborative, trans-disciplinary center for research and teaching in ELSI issues. The University of Utah Center for Excellence in ELSI Research (UCEER) focuses primarily on issues relevant to population screening for genetic conditions in the health care of women and children. 

Latest News

Research
Mar 30, 2017

Ethical issues in pediatric genetic testing and screening

Department of Pediatrics, University of Utah, Salt Lake City, Utah, USA Correspondence to Jeffrey R. Botkin, MD, MPH, Professor of Pediatrics, Associate Vice President for Research University of Utah, Research. The use of microarray and genome sequencing technologies is expanding in the care of children. More deference to parental decision-making is evolving in contexts wherein information and counseling can be made readily available.... Read More

Research
Mar 30, 2017

Genetics Hot Topics - April 19, 2017

Genetics Hot Topics: A Collaborative Evening Ethics with UCEER (Utah Center for Excellence in Ethical, Legal and Social Implications Research) “Genetic Testing and Disability: Is Genetic Testing Discriminatory?” Guest Lecturer: Adam Cureton... Read More

Research
Mar 30, 2017

Whole Genome Sequencing and Newborn Screening

Clinical applications of next generation sequencing are growing at a tremendous pace. Currently the largest application of genetic testing in medicine occurs with newborn screening through state- mandated public health programs, and there are suggestions that sequencing could become a standard component of newborn care within the next decade. As such, newborn screening may appear to be a logical starting point to explore whole genome and whole exome sequencing on a population level. Yet, there are a number of ethical, social and legal implications about the use of a mandatory public health screening program that create challenges for the use of sequencing technologies in this context. Additionally, at this time we still have limited understanding and strategies for managing genomic data, supporting our conclusion that genome sequencing is not justified within population based public health programs for newborn screening.... Read More

Research
Nov 01, 2016

Frontiers in Precision Medicine II: Cancer, Big Data, and the Public

In partnership with the Department of Theatre,the Office of Health Equity and Inclusion, the Center for Clinical &Translational Science, the Department of Medical Ethics and Humanities, Utah Presents brings a staged reading of Deborah Zoe Laufer’s play “Informed Consent.” This play explores ethical and human issues in clinical research inspired by the recent real-life controversy the Havasupai people and Arizona State University. ... Read More

Research
Nov 01, 2016

2017 ELSI Congress - Abstract Submissions Now Open!

Abstract submissions for the 4th ELSI Congress - Genomics and Society: Expanding the ELSI Universe – are now open. Please click on the link below to submit an abstract and for more information about the meeting Abstracts are due by December 1, 2016. Feel free to share this link with others who may be interested – and stay tuned for more information. ... Read More

Research
Nov 01, 2016

2017 ELSI Congress - Abstract Submissions Now Open!

Abstract submissions for the 4th ELSI Congress - Genomics and Society: Expanding the ELSI Universe – are now open. Please click on the link below to submit an abstract and for more information about the meeting Abstracts are due by December 1, 2016. Feel free to share this link with others who may be interested – and stay tuned for more information. ... Read More

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