Information for Researchers

Accessing Utah Cancer Registry Data for Research Purposes

Researchers can perform custom queries of cancer incidence, mortality, and trends in Utah as well as other geographical areas using one of several national or international data sources. Please visit our cancer statistics page for more information.

Researchers who want to obtain data from Utah Cancer Registry or want to contact potential research participants through Utah Cancer Registry must submit project information for review and approval. Please complete our research pre-application.

Application & Review Process

The application and review process will vary depending on the nature of the project and data requested. If you need summaries such as case counts for research planning purposes, an email is adequate documentation of the request and we can usually respond quickly.

When a researcher requests a record-level data set and/or identifying information, an application and review process are called for. We suggest that the principal investigator meets in-person with our research staff before filling out a full application.

Please complete and submit the brief Utah Cancer Registry research pre-application form. We will contact you to set up a meeting to discuss your project and data request.

Publications & Acknowledging Utah Cancer Registry

Researchers obtaining Utah Cancer Registry data will be asked to sign a data use agreement to affirm they will observe appropriate data security measures and that they will protect the confidentiality of individual patients and health care providers. 

Researchers who are submitting manuscripts, abstracts, or presentations based on research that included Utah Cancer Registry data should submit the report to the registry for advance review. 

Why Do We Review Your Research?

The purpose of the Utah Cancer Registry review is to confirm that:

1) No potentially identifying data are published or presented, including suppressing cell counts fewer than five; and

2) The Utah Cancer Registry is acknowledged as a data contributor.  This acknowledgment should state: "The Utah Cancer Registry is funded by the National Cancer Institute's SEER Program, Contract  No. HHSN261201300017I, with additional support from the Utah Department of Health and the University of Utah.”